Author Topic: Well, Damn.....  (Read 5205 times)

roo_ster

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Re: Well, Damn.....
« Reply #25 on: April 02, 2010, 01:54:27 PM »
Praying for you, wild man.
Regards,

roo_ster

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MillCreek

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Re: Well, Damn.....
« Reply #26 on: April 02, 2010, 02:34:42 PM »
I can see that no one has asked the tough questions yet.  Is this a prolactinoma, and will Viagra take care of any impotence?  Cause I get a lot of emails offering this for cheap, and I can always forward them on!
_____________
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Quote from: Angel Eyes on August 09, 2018, 01:56:15 AM
You are one lousy risk manager.

Jocassee

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Re: Well, Damn.....
« Reply #27 on: April 02, 2010, 02:59:20 PM »
Just thing of it as a big booger.

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Viking

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Re: Well, Damn.....
« Reply #28 on: April 02, 2010, 03:28:50 PM »
Sorry to hear it dude. Best wishes being sent your way.
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AmbulanceDriver

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Re: Well, Damn.....
« Reply #29 on: April 02, 2010, 05:20:58 PM »
Rocketman, leaving it be isn't really an option.  If left unchecked, it will continue to grow (no one is sure how fast these suckers grow because they're different in every person, including some going into a "static" state where they stop growing altogether) and eventually start putting pressure on the optic nerve, as well as compromising the sinus cavities, etc.  The standard course of treatment is start with dopamine agonists.  If that doesn't work, surgery, and if that doesn't work, nuke it from orb... err.. i mean, radiation therapy. 

MillCreek, yes, it is a prolactinoma, but no, the e-mails aren't necessary.  :)  I've been lucky in that even though it's a macroprolactinoma, hormone levels aren't horrifically out of whack.  Just outside of the normal range.  So the hope is that once the dopamine agonist starts doing its thing, levels will return to normal.  If I don't need surgery..  :)
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sanglant

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Re: Well, Damn.....
« Reply #30 on: April 02, 2010, 06:01:05 PM »
just encase it goes that far, remember this term ;) it's not easy to find a hospital with it yet, but i would say it's worth the drive [tinfoil]

MillCreek

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Re: Well, Damn.....
« Reply #31 on: April 05, 2010, 06:20:39 PM »
http://content.nejm.org/cgi/content/full/362/13/1219

AD, this article just came out in this week's NEJM.  I thought you might find it of interest.
_____________
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MillCreek
Snohomish County, WA  USA


Quote from: Angel Eyes on August 09, 2018, 01:56:15 AM
You are one lousy risk manager.

AmbulanceDriver

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Re: Well, Damn..... (an update)
« Reply #32 on: April 26, 2010, 08:04:26 AM »
Well, had the initial consult with the endocrinologist this last week.

It turns out that the nurse that read me the radiologists report misread the report.  It's a microprolactinoma, not a macro.  This makes the treatment course so much easier and completely non-invasive.  No need for surgical treatment, everything can be done just with medication.

Start the cabergoline therapy this week, very low dosage (.125mg twice a week) and follow up bloodwork in a couple weeks to see how the tumor is responding. 

The hope is that the cabergoline will be able to successfully shrink the tumor to the point that I'll be able to stop taking it eventually.

Thanks for all the thoughts and prayers folks.  Really been appreciated.
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Bogie

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Re: Well, Damn.....
« Reply #33 on: April 26, 2010, 10:17:29 AM »
Uh... Who else would like to do a dance on that nurse's head?
 
I've had one of those pituitary tests before, and everything was okay until the doctor told me to turn around and bend over...
 
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RocketMan

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Re: Well, Damn.....
« Reply #34 on: April 26, 2010, 12:24:48 PM »
Good news indeed, AD.  Glad to hear of the, er, "mistake", since it works out so well for you.

And Bogie, your first clue should have been in knowing where the pituitary gland is located...  Where were his hands, by the way? =D
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Re: Well, Damn.....
« Reply #35 on: April 26, 2010, 06:30:37 PM »
Cool, AD. Glad the news got better. Scary that a "nurse" wouldn't understand and be sensitive to the difference between and A and an I.  Best wishes, Amigo.

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