Author Topic: The Celiac Disease awareness thread.  (Read 5216 times)

proud2deviate

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The Celiac Disease awareness thread.
« on: May 05, 2007, 05:42:21 PM »
Okay, folks. It just so happens that May is Celiac Disease Awareness Month. This is for you, your loved ones, the guys at work, or anyone else you think might be affected. Spread the word Smiley

Please be aware that I'm not a doctor, nor am I afflicted with this disease (I think,) so I might not have all my facts straight. But the basic premise is sound.

So, what is Celiac Disease, you might ask? Basicly, it's an auto-immune disorder that causes folks to have a bad reaction to gluten. This reaction damages the small intestine, and can produce a wide array of symptoms, which might include:

Diarrhoea or constipation,

Abdominal pain or cramping,

Fatigue,

as well as others too numerous to mention.

Now then, on to the gluten part. As you might already know, gluten is a protien found in wheat, rye, barley, and a couple of other grains. This is the stuff that makes your bread chewy. It's also damn near everywhere. If a food product comes in a box or a bag, chances are decent that it has gluten in it. Most processed foods pick it up somewhere along the assembly line. This isn't normally a big deal, but to a person with Celiac Disease, the stuff is basicly poison. If I recall correctly, as few as twenty parts per million can trigger a reaction. So, even foods that are normally gluten-free can be contaminated quite easily. It doesn't take more than a crumb off your sandwhich to do it.

Okay, and now the really bad news. Here in the USA, the medical community has a pretty poor track record for diagnosing (and mis-diagnosing,) this illness. My mother spent about five years of her life in near-constant brutal agony until they figured it out, and unfortunately, her experience isn't uncommon.

There are a couple of reasons for this. Firstly, the symptoms are so diverse that it can mimic a lot of other disorders (If you have IBS, I'd urge you to look into this.)

The second reason is something of a sore subject with me. Simply put, there's not much money to be made on Celiac Disease, so doctors aren't trained to look for it. If your doctor has a certain degree of apathy, this can be even worse. (One doctor's advise to my mother ammounted to; "Eat more fiber and come back in a month when I can bill your insurance again." angry ) There's no miracle cure they can sell you, no corrective surgery. About the only treatment you can count on is to stop eating gluten.

Well, that's about all I have to say on the subject. I apologise for my scatter-brained approach to this thread. There's a lot more to this than I can bring to mind in just one session. For a more concise overview, here's a link to the Wikipedia article on the subject, and another for The Celiac Disease Foundation. A Google search will turn up more information than you can shake an armadillo at.

I'd like to ask y'all to educate yourselves about this. Even if you don't have it, chances are you know someone who does. This disease probably won't kill you, but it can have a tremendous impact on your quality of life. Like I said before, help spread the word.

Oh, and if there's anyone here with Celiac's, I'd like to welcome them to relate their advise and experiences, or to chime in with anything I might have left out Smiley

A note to the Moderators: I thought about posting this on THR as well, but I realise that it probably won't fly as it's not gun-related. However, it's my humble opinion that the more exposure we can give this thing, the better. So, if one of you would like to post this thread or link it to one over in General, I'd be very much obliged. If that's not in the cards, then it's no big deal. Thanks for reading, all the same Smiley

J.J.

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Re: The Celiac Disease awareness thread.
« Reply #1 on: May 05, 2007, 07:01:37 PM »
My Grandmother has Celiac Disease,  she about starved to death before it was figured out.

DJJ

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Re: The Celiac Disease awareness thread.
« Reply #2 on: May 06, 2007, 06:03:36 AM »
I heard a story about a girl with this condition; the Catholic church refused to recognize her communions because she wasn't using an "official" (wheat-based) wafer.

She's going to hell because she can't eat wheat.

Matthew Carberry

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Re: The Celiac Disease awareness thread.
« Reply #3 on: May 06, 2007, 08:45:10 AM »
I'd have to see documentation before I'd even consider believing that story to be true.

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cosine

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Re: The Celiac Disease awareness thread.
« Reply #4 on: May 06, 2007, 09:12:48 AM »
I heard a story about a girl with this condition; the Catholic church refused to recognize her communions because she wasn't using an "official" (wheat-based) wafer.

She's going to hell because she can't eat wheat.

Ahem *clears throat*

Not being able to receive Holy Communion does not condemn one to Hell.
Andy

cosine

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Re: The Celiac Disease awareness thread.
« Reply #5 on: May 06, 2007, 09:14:28 AM »
I have a friend who has a mild case of Celiac disese. (his father has it much more severely.) My friend's father almost wasted away before doctors figured out he had Celiac's disease.
Andy

DJJ

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Re: The Celiac Disease awareness thread.
« Reply #6 on: May 06, 2007, 09:47:44 AM »
I heard a story about a girl with this condition; the Catholic church refused to recognize her communions because she wasn't using an "official" (wheat-based) wafer.

She's going to hell because she can't eat wheat.

Ahem *clears throat*

Not being able to receive Holy Communion does not condemn one to Hell.

I was being facetious.

Look here---> http://www.msnbc.msn.com/id/5762478/

cosine

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Re: The Celiac Disease awareness thread.
« Reply #7 on: May 06, 2007, 10:58:32 AM »
I was being facetious.


Oh. Sorry for taking your comment too seriously. Sometimes I don't recognize hyperbole when I see it. Apologies if I came across as a bit a of jerk.
Andy

Matthew Carberry

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Re: The Celiac Disease awareness thread.
« Reply #8 on: May 06, 2007, 11:36:38 AM »
I'd like to apologize for cosine's response as well.

 grin
"Not all unwise laws are unconstitutional laws, even where constitutional rights are potentially involved." - Eugene Volokh

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Matthew Carberry

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Re: The Celiac Disease awareness thread.
« Reply #9 on: May 06, 2007, 11:38:50 AM »
As far as Celiac disease goes.  I've got some associates that are out feet of intestine due to its effects.

The new whole and organic food revival should help with making home cooking easier anyway.  Still makes eating out a horror story.   undecided
"Not all unwise laws are unconstitutional laws, even where constitutional rights are potentially involved." - Eugene Volokh

"As for affecting your movement, your Rascal should be able to achieve the the same speeds no matter what holster rig you are wearing."

cosine

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Re: The Celiac Disease awareness thread.
« Reply #10 on: May 06, 2007, 11:51:46 AM »
I'd like to apologize for cosine's response as well.

 grin

Eh, I don't mind going a bit out of my way to avoid disharmony or misunderstanding, what can I say...  Wink
Andy

AugustWest

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Re: The Celiac Disease awareness thread.
« Reply #11 on: May 07, 2007, 05:59:40 AM »
Tangential to the OT, but I happened to be a the First Communion of my future niece on Saturday, and noted that gluten-free Host was offered.

Bogie

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Re: The Celiac Disease awareness thread.
« Reply #12 on: May 07, 2007, 09:20:38 PM »
Atkins RULEZ....
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AJ Dual

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Re: The Celiac Disease awareness thread.
« Reply #13 on: May 08, 2007, 07:06:31 AM »
A friends niece has that. She was three, and still wieghed than most of the one year old's in the family just learning to walk.

Her parents were a wreck because the were getting "failure to thrive" warnings in the medical records, and CPS would have been sicced on them had they not had such massive documentation of visiting every specialist and clinic in the metro area they could think of. Even then, I'm sure the mother was being eyed up for "Munchausen's by Proxy"...

The little girl was finally diagnosed, put on a gluten-free diet, and IIRC, she grew about a foot in one year.
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Mannlicher

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Re: The Celiac Disease awareness thread.
« Reply #14 on: May 10, 2007, 01:24:22 PM »
the percentage of Celiac Sprue sufferers that have a sever case is very small.  The percent of the general population that has any degree of CS is very small.  These days though, every one with even a mild touch of CS feel that if they even come close to a micro gram of gluten, its curtains.
As so often happens, for those few to avoid a medical condition that afflicts only them, the rest of the population has to modify their lifestyle to accomodate a few.

Mabs2

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Re: The Celiac Disease awareness thread.
« Reply #15 on: May 10, 2007, 04:34:11 PM »
I experience those symptoms nearly every day...not to the point where I can't eat though.
I still have no idea what's going on.  I've tried a few things but to no avail...I'd try avoiding bread for a while if it weren't for the fact that everything else I could eat would probably have it in it anyway...
oh well.
I've also sort of self diagnosed myself with lactose intolerance.
No matter how much I suggested it to my doctor he didn't seem to agree.
But since I switched to soy milk I don't get sick unless I have something like cheese or milk, so meh.
Still got some other stuff going on I'm not sure of yet...really sucks.
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grampster

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Re: The Celiac Disease awareness thread.
« Reply #16 on: May 10, 2007, 05:38:03 PM »
I was diagnosed with a rather severe case of lactose intolerance along with IBS.  The doc did check for wheat allergy (sprew sp?).  I had cramps 24-7.  Along with that is the sensation of having to dump virtually all the time.  This went on for nearly 10 months.  Not a good thing, trust me.  I have to avoid lactose which is in many foods, milk, cheeses, most breads, a lot of dairy stuff plus eggs and virtually any kind of food that I happen to stumble across that disagrees with me.  Fortunately, a drug called Hyoscyomine relaxes the colon and Citrucil provides bulk for regular bowel movements.  I'll never bitch about drug companies again.

Beer does not bother me though.  Neither do my other favorite beverages.
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client32

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Re: The Celiac Disease awareness thread.
« Reply #17 on: May 11, 2007, 06:46:21 AM »
My grandmother-in-law has Celiac.  After finally being told that was her problem, she changed her diet and now feels better than she can remember feeling.

There has been a time where we thought our son might have this as well. 
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Northwoods

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Re: The Celiac Disease awareness thread.
« Reply #18 on: May 12, 2007, 09:12:56 AM »
My wife has Celiac as does her mother, sister, aunts and many cousins.  It's nothing to fool around with, and there is no such thing as a "mild" case of Celiacs.  You might have mild symptoms, but the damage is still being done.  Lots of people have little or no symptoms until they discover they have colon cancer at the age of 50. 

It is a genetic diesase and if you have a direct ancestor that had it you should get checked, particularly if you are having any symptoms.

And yes, the only treatment is a completly gluten free diet.  My wife is one of those people who can tell if they get even a tiny amount in their system.  But if you have Celiacs, just becuase you think you can eat a little wheat and not feel bad you really are just fooling yourself.  My wife was one that thought she could "cheat" and be OK.  Over time she figured out how wrong that was.  Luckilly for her that didn't take more than a few years.  For some it might take until they're much older to figure that out and have done too much damage to avoid serious problems like cancer.

Quote
As so often happens, for those few to avoid a medical condition that afflicts only them, the rest of the population has to modify their lifestyle to accomodate a few.
WTF, Over?  WHere is anybody even suggesting that everyone go onto a gluten free diet?  If you're aflicted with Celiacs then yes, you should choose a gluten free diet, but I've never heard anyone recommend that all people do so nevermind legislation to force same.
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Matthew Carberry

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Re: The Celiac Disease awareness thread.
« Reply #19 on: May 12, 2007, 10:14:38 AM »
He's referring to the current wingnut campaigns to eliminate all peanuts from schools, even in the lunchboxes of the non-allergic, to accomodate the ?% of kids with nut allergies.

The similar campaigns in big cities to require warning labels on restaurant meals of all potential allergens and glutens (if not just asking for bans on the same) instead of figuring afflicted people should be smart enough to ask.

That sort of thing is going on as we speak.
"Not all unwise laws are unconstitutional laws, even where constitutional rights are potentially involved." - Eugene Volokh

"As for affecting your movement, your Rascal should be able to achieve the the same speeds no matter what holster rig you are wearing."