I was on it for about a year, pre-chemo. It was the next to last step on the "Treatments to try before we do chemo" continuum.
What was it like ??
HULK SMASH !!!
Not sure about the weight thing. I had been retaining lots of water because my kidneys were failing, so I was also on Lasix, and peeing like a Racehorse.
But seriously. The slightest things would set me off. I was Bill Bixby, "Don't make me angry. You wouldn't like me when I'm angry." I made R.Lee Emery in Full Metal Jacket look like Mother Teresa. Yellling, screaming, fits of rage. All over little things. They tried to give to again in conjunction with the chemo. I told the doc to "F- off, I'm not taking that again."
If they said I would have to take it again or I would die, I would go suck start a gun instead.