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Main Forums => The Roundtable => Topic started by: onions! on August 04, 2005, 07:45:25 PM

Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on August 04, 2005, 07:45:25 PM
For several months my sleep quality has gone down hill.I've tossed & turned the night through ,ending up w/the bed sheets in a twisted wad every day.I've fallen asleep @ work &,most disturbingly,I've fallen asleep while driving-short,twenty minute commutes even.I've known forever that I snore but I never thought that It would be a symptom of poor sleep.
It turns out that a combination of my snoring,increased age,& a wee bit of weight gain has changed my life for the worst.

I finally had a sleep study done last sunday.Turns out I'm "waking up" about 30 times/hour.Sometime around 4 A.M.I was fitted w/a mask & hooked up to a compressor.After taking an hour or so to get used to it I slept,finally.When the tech came to get me up & kick me out(morning)he told me that in the last two hours I hadn't woken up once!!!Wow!Now I have to wait for the DR.to call me to evaluate what exactly happened.& while I'm not looking forward to sleeping attatched to a 1970s womens hair drier/curler machine(that's what it looks like.a small box w/a a long hose attatched to a small mask)I will if it helps my sleep & can improve the rest of what ails me.

Anyone else?
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: atek3 on August 04, 2005, 07:51:24 PM
I'm getting a bad nights sleep lately... but I've been having vivid lucid dreams almost every night... wierd.

atek3
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on August 05, 2005, 12:40:40 AM
I have the exact same problem and I haven't been to my sleep study yet.  You feel like you are suffocating sometimes and wake up?  This issue combined with high BP meds (diuretic) making me pee all night and you can guess what sort of nights I have.  Anyway, a family friend just started using one of these apparatuses (apparati?) and she has started sleeping.  Guess it's time to finally go in for my eval...

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: JAlexander on August 05, 2005, 04:35:19 AM
Yeah, I have one.  I got a sleep study done last December at the urging of my wife and best friend, and the doctor told me I could either have a CPAP machine or risk dying 'way too young.  So I got the machine.  I was very skeptical about it initially, but I'm now a total convert.  The difference between my sleep before and after the machine is amazing.  I no longer fall asleep during the day, I no longer have to fight dozing off during driving, I have more energy, I'm losing weight, et cetera.  I could go on, but you get the idea.
If your doctor says you'd benefit from a CPAP machine, get it.  I can't convey to you how much it'll improve your life.

James
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: SADShooter on August 05, 2005, 08:17:13 AM
My experience hasn't been as positive as JAlexander's. I haven't used the CPAP in a while because I struggled with it for several months, and never really got used to the mask. I am going to see the doctor and try using it again. Most insurance will let you rent the machine on a trial basis. I would still encourage you to try it.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on August 06, 2005, 04:08:19 AM
I mostly sleep on my stomach but my position varies greatly with sleeping on my back being the least of them.  Is wearing this mask going to prevent me from sleeping on my stomach?  How about my sides?  No way in hell I am going to be able to sleep all night on my back--hurts way too much.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: mike on August 06, 2005, 07:28:06 AM
My wife has it but was able to have it corrected with surgery, so she doesn't need the machine anymore. I'm glad as that darn machine was keeping ME up at night!
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: JAlexander on August 06, 2005, 10:13:01 AM
Quote from: SADShooter
My experience hasn't been as positive as JAlexander's. I haven't used the CPAP in a while because I struggled with it for several months, and never really got used to the mask. I am going to see the doctor and try using it again. Most insurance will let you rent the machine on a trial basis. I would still encourage you to try it.
I have to admit that the first couple of months were a bit rough.  I usually woke up to find that I had pulled the mask off during the night.  That said, I eventually got used to it.  My main problem is with my throat getting dry when the humidifier runs out of water while I'm asleep.

Quote from: TarpleyG
I mostly sleep on my stomach but my position varies greatly with sleeping on my back being the least of them.  Is wearing this mask going to prevent me from sleeping on my stomach?  How about my sides?  No way in hell I am going to be able to sleep all night on my back--hurts way too much.

Greg
It's definitely easiest to sleep on your back, but I have good luck sleeping on my side.  Sleeping on your stomach while wearing the mask would be a good trick, although I bet it could be done.
As I said, though, give it a try.  It can't hurt, and it might help a lot.

James
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: toro on August 06, 2005, 10:57:37 AM
My son has sleep apnea.  He snored so loud his wife was unable to sleep.  He drove her nuts.  He started falling asleep during the day and was afraid he was going to fall asleep while driving.  He went to a sleep center and they said he was getting only half the oxygen he needed during the night time hours.  He actually stopped breathing at times and the doctor told him if he didn't get a mask that it would shorten his life span.  He got the mask and there was a world of difference in him.  He never falls asleep during the daytime and never worries about driving.  His wife loves the machine and says it actually puts her to sleep.  She has dropped 50 pounds and he lost 30 pounds.  It really changed his life for the better.  He has had his mask for about five years now.


                                          Mrs. Toro


===========================================
Romans 13:11
And that, knowing the time, that now it is high time to awake out of sleep: for now is our salvation nearer than when we believed.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on August 06, 2005, 02:32:30 PM
There are two people I know that have had very different expieriences w/the mask.The first is my step-dad.He's 56,6'2",& about 300ish.When he had his sleep study he was told that his sleep was being disturbed,on average,twice/minute!He started w/the mask shortly thereafter.After a very short acclimation period he started sleeping like a baby.He's lost weight,& his color has improved.He says that he has more energy than he's had in years.

The other person is a friend that I work next to all day,every day.Bruce is 48,6'3",& 195lbs.He's had four (four!!) surgeries on his throat to increase his airflow.All failures.He's had the compressor for about three years now.He says that he can only wear it for a few hours & then it comes off.

I'm glad to see that there are others here who not only have the same problem,but have benefited from taking the test & using the CPAP machine.

I hope that I end up being able to benefit from it.I sleep mainly on my side so I don't expect any problems there.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on August 06, 2005, 04:08:03 PM
One common theme I am seeing is that most everyone here with experience or knowledge has said that they or someone they know lost weight.  I know that being overweight can cause breathing problems because when I was skinny, I didn't have these sleeping issues.  Thing is, why does this make people lose weight?  Higher metabolism maybe?

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on August 06, 2005, 05:00:56 PM
TarpletG?My doctor explained it this way.He said that my body wanted to fall to sleep during the day but I needed to stay awake.So,I ate.I gobbled up calories to try to stay awake.More tired=more food.So,he said that if I started to get a decent nights sleep I wouldn't need the extra food during the day just to stay awake.Break the chain &,all else being equal,I should lose weight.(diet & exercise'll help too-not falling asleep on the way to the bicycle will be kinda nice.)
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Sergeant Bob on August 07, 2005, 09:07:38 AM
Welcome to the world of the hoseheads!

Like my second sleep doctor (a pulmonologist) told me, feeling more rested and having more energy are just pleasant side effects of being on CPAP.

Your case sounds pretty similar to mine in that I "woke up" 30 to 35 times an hour. In reality, the "waking up" is when you stop breathing. My O2 levels were going down into the low 60% range (if your level is below 88% all the time you need to go on supplemental oxygen).

Each time you "wake up" (also referred to as an "arousal, a medical term, don't get hinky) your brain goes into survival mode. It elevates your blood pressure, blood sugar level, heart rate, adrenaline levels. In other words, you go into "fight or flight" mode. Fight or flight is good and can save your life but, it's not good for you when it's happening 30 times per hour, and can lead to permanently elevated levels of each.

I have a ResMed AutoSpirit APAP (with heated humidifier), with a Respironics Comfort Gel mask and it has worked well for me so far.

When you get a DME (Durable Medical Equipment) provider, don't just let them give you what they want. Make sure you get what you want. Do not compromise (especially with mask selection). Make sure you can exchange the mask for a different type or brand (within a reasonable amount of time). It is your interface with the machine and may be the determining factor in regards to your compliance rate. I'm 100% compliant with the equipment I have and never even take a nap (which I don't need nearly as often as before) without my leaf blower, LOL.

Did I mention do not compromise? It's your health at stake, and you are in charge.

Here are a couple links to some good CPAP (hosehead) forums. You'll find alot of good information and support there. Good luck with it.

http://www.cpaptalk.com/viewforum.php?f=1

http://www.sleepnet.com/apnea/apneainf.html
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Lt. G on August 08, 2005, 04:03:18 PM
I have been on a c-pap, bipap for over 9 years now. After my sleep study, I fell asleep easy for the first 2 weeks, slept like a baby. Woke up totally refreshed.

Then I battled the one arm octapus  for over 5 years, tossing, turning, struggling with the cpap. Then one night I went back to being able to tolerate the machine.

I recently went back for a second sleep study, now I am on a bipap with heated humidified air and they wanted to put me in a full face mask, no way!!!! I have what the call a comfort mask, I have lost 21 pounds, am walking/eating right. I am turning my life around. Get  to the sleep study ASAP!!
                                             Lt. G
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Greg L on August 08, 2005, 07:16:59 PM
I've slept with a couple of guys before & after they've had the machine (oh shut up, one was a business associate that I had to share a room with while traveling, the other was another father in Scouts that I've shared a tent with).  The before was miserable for me as many times in the night I would wake up wondering "OMG, have they died?"  They wouldn't sleep well (without knowing it) & neither would I.  After they got their machines they were much nicer to be around the following day & acted much healthier.  From what I can tell it has worked wonders for both of them.

Although I do have to admit that it is funny seeing the Scout guy show up for a backpacking trip with an additional bag & car battery to haul along with him Cheesy .  However to be fair the other adults have helped him haul along the battery as it improves OUR sleep as well Smiley .
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: One of Many on August 09, 2005, 05:39:45 AM
I have been using a CPAP for several years.  I too was falling asleep while driving and at work, until I finally submitted to my wife's request to get tested for Sleep Apnea.  I has made a huge difference in my ability to function, and I would probably have died already if I had not gone on the CPAP.  I was waking more than once per minute when I was tested, and my blood oxygen level was very low.  This caused me to be drowsy all of the time, and I can not recall how many close calls I had while driving.

I do not use a Mask on my CPAP.  I have instead a fitting that forces air into each nostril, and leaves the mouth and face uncovered.  I had to learn to keep my mouth closed while sleeping, which was done by wearing a strap to apply a light force against my chin, toward the back of my head.  After a few months time, I was able to eliminate the chin strap.  I still must wear a harness to keep the hose in place, and I sometimes get tangled up when I toss and turn (for other reasons that lack of oxygen), but it is much better to have the CPAP than be dead.  I have GAINED weight (didn't lose a pould) since I went on the CPAP - it depends on your lifestyle.

You may have difficulty sleeping on your stomach, if the mask exhausts out the front (you can't block the outflow), but that may depend on the mask you get.

It is definitely a life saving device, but it will require getting used to, both by you and your partner (there is some noise generated by the pump motor and due to the air flowing through the hose and exhaust outlet).
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Brad Johnson on August 09, 2005, 09:32:31 AM
I was having sleeping trouble, but it was directly linked to the extra weight I was hauling around. After losing 35 lbs I sleep much better. No more waking up multiple times during the night, and no waking up in the morning with a sore throat from heavy snoring.

Brad
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on August 20, 2005, 03:46:29 AM
Well,I picked up my CPAP machine yesterday afternoon.As I'd been dog tired all day & in fact had caught myself nodding off while waiting for the hwy traffic to move I expected to have an easy time falling asleep anyway.

What a suprise!I was not only able to fall asleep within moments of putting the mask on(I'd had a BIG problem w/the mask during my sleep study),but when I woke up this morning I hadn't even moved during the night!No twisted,wadded up sheets!No swapping end for end on the bed!I almost feel like I want to cry.It's been almost a year since I've had a nights sleep like that.

However dorky I thought it would be at first I'm a believer now.If you can't sleep then definately-see your doctor.Once you start talking about it it will probably suprise you just how many people you know that have a problem & use a CPAP type machine to sleep.Heck,I've even found another guy where I work that uses one.That's THREE guys out of forty odd male employees!

The only negative came from my dogs.My oldest just gave me a "what's he up to now look?" & went to sleep.Of the twins,one wouldn't come close to me when the mask was on,& his sister just started sitting there barking @ me & finally had to spend a few minute or two sniffing the whole apparatus out.Satisfied,she went to sleep.Smiley
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on August 20, 2005, 02:00:07 PM
Good for you!  I am waiting on a referral for a sleep study right now.  Went to see the doc about it last week.  Hopefully will hear something this week about it.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on August 20, 2005, 04:29:32 PM
Tarpley?I hope it turns out well.You need a good turn now,yes?:)Post your results?
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Myself on August 21, 2005, 08:51:34 PM
I was just informed this week by my Dr. that I should have a sleep study done.  This is interesting reading.  I guess we will see what happens.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Sergeant Bob on August 22, 2005, 09:01:31 AM
Quote
How involved is a sleep study? I might try one.
A sleep study will require you to sleep overnight at the sleep center for one or two nights.
Some do a split study, where they test you for half the night, then hook you up to a CPAP (Constant Positive Airway Pressure) machine for the remainder of the night (to determine what pressure you require). Sometimes it will be done on two separate nights.

It's pretty expensive (mine was $3,200), so insurance is handy.

Here's a link to a sleep test (not definitive, but will give you a good idea if you need to be tested).

http://www.sleepnet.com/sleeptest.html

Here are links to a couple sleep apnea forums. They are very informative and well worth reading before you get put on a machine.

http://www.cpaptalk.com/viewforum.php?f=1

http://www.sleepnet.com/apnea/apneainf.html
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on August 22, 2005, 10:09:07 AM
I have to get up and pee like 3 or 4 times a night.  Am I going to be able to successfully complete a sleep study if I have to get up and 'go'?

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on August 22, 2005, 10:50:56 AM
Tarpleyg?You shouldn't have a problem.I asked the same question.I was told that all I had to do was to speak out & ask for help.That they would come & un-plug me.I did & they did.

One thing that really impressed me about the "sleep disorder" clinic was the money involved.The exam rooms were normal doctors office size,say,6x8 feet.The sleep study rooms,however,were huge!Each room was  twelve feet square,had a double bed,a LAY-Z-BOY type chair,& a big idiot box.The place reminded me of a decent hotel room.Given the $$$ placed on space in any medical building I've ever been in I can only speculate that this profession is making huge money.On top of that,I had to wait almost two months to get in & see the DR.let alone get the study done.That tells me that they are real busy.

Imagine a nation of hoseheads.Come home,kiss the wife,check the mail,eat your Soylent tablet,put your mask on,& re-charge your batteries.Ahhh,the future is now.

:-)
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on August 22, 2005, 11:56:32 AM
Just got off the phone with United Sleep Diagnostics.  Guess my referral finally got done.  Check-in is at 8:00 PM on 9/16.  A much as I dread going to do this, I know I have to.  I am hoping I have similar results to a lot of you--weight loss, more energy, etc.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on September 16, 2005, 03:13:03 AM
Well Tarpley,tonight's the night!

Good luck & sleep well.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on September 16, 2005, 04:54:10 AM
Yup, tonight's the night...not looking forward to the testing but I am looking forward to the ability to hopefully sleep soundly.

I have read where the DME providers have tried to stiff customers.  Anyone have details on this?  What I hear is that they get a prescription and while they can give you unit X which is better and they have approval for, they give you unit Y because it costs less therefore they put more in their pocket.  I want the best I can afford even if it means a little out of pocket expense.  Noise is not a factor as I already sleep with fans on but comfort and durability is a big factor.

Thanks all,
Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on September 16, 2005, 08:42:07 AM
Shop around!The doctors office gave me a list of DME suppliers in my area.I made a little lunch time road trip & visited three of them.One was closed for lunch(impressed was I??).The second stop,Lincare,quoted me $842 on the machine,$15 for the mask,& $10 for the hose.The last stop was to Airway Oxygen.They have trucks all around my town & I expected a bigger selection & a similar price.WRONG!They offered the same machine & attatchments but(& I had a hard time keeping a straight face) wanted $1200 for the same machine,$250 for the mask & $90 for the hose.Oh & they "...we are a supplier to the local hospitals.That keeps are prices down."
That women must have read the used car/appliance store salesmens guide.Geesh.

As my insurance picks up 1/2 (the balance is invoiced to me in 10 monthly payments) ,I chose half of the lesser total.Smiley

This is mine.      http://www.cpap.net/manufacturers_cpaps/resmed/s7elite.htm
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on September 16, 2005, 03:51:35 PM
yup, hose head, I used to get up 4-5 times a nite to pee. Very first nite of use I didn't get up once. I haven't dropped any weight though and I do exercise. Lately I've been feeling tired again, it may be time to go in and do another sleep study. One thing I know is if you don't dream it is a symptom of apnea. I was waking up 55 times an hour.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on September 17, 2005, 05:42:54 AM
Well, the thing sure is a PITA to wear.  I got in at 8 and got all wired up.  Was around 11 before the tech got the gremlins out of the system and I could do the first part of the study.  I had a hell of a time trying to fall asleep laying on my back but I finally did.  Had to summon the tech once to go pee.  He said I had lots of activity but did not specify how much or what type but that it was indicative of a sleep disorder.  Peed again and he hosed me up.  Had to really increase pressure to get me comfortable.  Once I fell asleep I was fine until I had a cramp in my calf.  I usually get up and walk these off but with all the hoses and wires, no can do.  Worked it out and tried to fall asleep again.  Took a while (man I hate sleeping on my back).  He came in and woke me up at 5 and it seemed like an hour since he put the mask on.  Maybe that's good.  The first breath I took through my mouth seemed like some stuffed a sock in my mouth.  I can see getting spoiled with this constant pressure.

Anyway, glad that crap is over.  Now I have to wait until the doc prescribes a box.  Please post what you are using if you haven't already.  I'd like to get some opinions.  Hope my crap Vista insurance covers this.  I am afraid they won't.  Cheap bastards.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on September 17, 2005, 09:11:00 AM
Sounds like the usual experience. They guy told me to let him know when I was tired. When I did he proceeded to take 45 minutes to wire me up. By that time I was wide awake again and couldn't fall back to sleep for nuthin'. I got up to pee at least 4-5 times too. Worst night of sleep I've ever had.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: brimic on January 23, 2006, 08:31:44 PM
I lurked on this thread awhile back because I was having sleep problems and being tired and cranky most of my waking hours for the last few years. My BIL has sleep apnea and encouraged me to get tested and the responses on this thread sort of pushed me over the edge.

Last friday night I had a sleep study done. It was the most miserable night of trying to sleep ever. I was dead tired and couldn't fall asleep, but apparantly I dozed off for awhile and they got enough data on me. My breathing was stopping on average 110x per hour. They hooked me up to the reverse vacuum cleaner and I slept very soundly, reaching deeper sleep than I was without it. I probably only slept a few hours, but felt very refreshed, hell I felt like Superman, unlike the groggy, headachey, hangover feeling I have most of the time when I wake in the morning.


I have a follow up with my doctor this friday, I hope I can get my machinery soon.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Fjolnirsson on January 23, 2006, 09:26:46 PM
Funny. I first heard of sleep apnea a few weeks back, and it sounded like the symptoms matched up with some complaints I'd had for years. A student of my wife's has a CPAP, and after talking to her, I researched a little bit, and thought I'd post on here, see if any of you guys had apnea. I found, that sleeping on my stomach helped keep my airway open(or so it seems to me), and things improved dramatically, which was a relief, as I hated the idea of the mask, etc. Well, things got in the way, and I forgot to post here, what with my sleep improving and all. The last few nights have been awful for me. Keep forgetting to lie on my stomach, and I'm back where I started.
I just read through this thread, and the things you guys talk about are things I've been having trouble with the last five years or so. Y'all have convinced me. I didn't realize how serious a problem sleep apnea is. I'm calling the doctor in the morning. I'd rather sleep on a machine than die in my sleep before 40. If I can get a good night's sleep, it'll be worth it.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: IndianaDean on January 23, 2006, 09:42:23 PM
I've got a friend who has this. I forgot what it was called, but knew he had to sleep with a compressor mask.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on January 24, 2006, 01:03:05 AM
It's not that  bad once you get use to it. My only complaint is I haven't experienced this dramatic weight loss I was promised and I'm reading about here. Sad
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: brimic on January 24, 2006, 01:39:59 AM
I could use some dramatic weightloss myself. I set out to drop 30 lbs 2 years ago, now I need to lose 50. Sad
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on January 24, 2006, 02:48:43 AM
Actually, most of the weight gain came after I quit smoking, Then the bad knee and back kicked in and put limits on my exercising. Can't run anymore for one thing. Hiking the hills ain't so good for the knee either. 280 sad... miss mountain peak views... Sad
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on January 24, 2006, 05:07:32 AM
Well, it's been 4 months since I started on CPAP.  Most nights I do not get out of bed to pee unlike before when I was getting up sometimes as many as 11 times to go.  I can't sleep on my stomach anymore as I used to and my back problems have pretty much ceased.  I now sleep on my sides mostly and some one my back.  I used to wake up sore as hell in my lower back and now I don't.  I don't nap as much as I used to and I can't remember the last time I felt sleepy driving (used to be almost daily driving 20 minutes home from work).  I still get a little sleepy at work if it's a slow day but nowhere near as much as before.  My blood pressure has dropped some but I still need to take my meds.  I am losing weight although that is more of my actually trying now.  -19 lbs since Christmas.  I have about 100 more to go to get to my ideal weight although anything is a plus at this point.  I don't snore now and if I had to try and sleep without the mask now, it'd be near impossible for me.

If you are overweight, snore a lot, get up a lot at night, and feel sleepy all the time, you probably have sleep apnea.  Go to the doc and get it checked out.  Sleeping with a CPAP may seem like a huge PITA but once you get used to it you'll feel a lot better.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on January 24, 2006, 05:18:28 AM
Excellent to hear! Cheesy

My weight stems from the fact that although I was gaining I was always working out one way or another. So I did not put on fat, I put on muscle. OK, I put on some fat too but mostly muscle. I'm what the doctor refered to as "in good shape but overweight". I refer to it as "Body by Ben and Jerry's". My blood pressure is so good it astounds the nurses. Now that the holiday binging is over, I'm trying to cut back on those kinds of "empty" calories.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Guest on January 24, 2006, 07:12:46 AM
I currently use a BIPAP (BI Positive Airway Pressure), graduated from a CPAP (Continuous Positive Airway Pressure), what you call a compressor.  As I read through the replies I agreed with most of the symptomology - I had it all in spades.  Once I started on the Presure machines I was amazed at the instant improvement.  Practically all of the positive things mentioned have happened to me as well.  Thank God for these machines.  I like a nose mask through a humidifier.  I don't care for heated air, I prefer it at room temp.  I strongly advise you, or anyone, having sleep problems - even if it's just snoring, to have a sleep study oerformed and if needed use a breathing machine.  If you have problems tolerating the machine, work with your Doc to find a combination that you can live with.  Often it's just a matter of getting used to a new and very different way of sleeping but the end result is wonderful.  Bear in mind that Sleep Apnea can be fatal!
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Sergeant Bob on January 24, 2006, 07:43:45 AM
"Hi, I'm Sergeant Bob, and I'm a hosehead"

Quote
I could use some dramatic weightloss myself. I set out to drop 30 lbs 2 years ago, now I need to lose 50.
Just be glad you didn't set out to lose 60 lbs! Wink

As my doctor told me, "Losing weight, feeling more energetic, etc, are just pleasant side effects you might experience. The health benefits are the primary concern."

I didn't experience a sudden increase in energy. I certainly didn't experience weight loss. But, I do feel less tired during the day and don't tend to get sleepy while driving or reading as much. My blood presure has decreased a bit (although it was never high and I also quit smoking so I'm not sure CPAP caused it).
But, I do know that when I sleep without my leaf blower, I can definitely tell a difference.

Another thing I've found is that most doctors and DME's don't know squat about the treatment of sleap apnea.

I've learned more about the treatment on my own from others who have the same  problem than I've learned from my doctors or DME.

If you can, get a prescription for an APAP (Automatic Positive
Airway Pressure) machine. With an APAP, you can monitor the effectiveness of your day to day treatment and improve that treatment. Through the forums I've read I have more than doubled the effectiveness of my treatment. Things I probably wouldn't have found out without another $3200 sleep study, or not at all (as you who have had one know, you can't get any kind of real sleep in those studies)

Here are some links for some sleap apnea forums. These are very valuable resources for info on your problems.

http://www.cpaptalk.com/viewforum.php?f=1

http://www.sleepnet.com/apnea/apneainf.html

http://www.cpap-forum.com/forum/index.php

http://www.talkaboutsleep.com/message-boards/viewforum.php?f=1
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: brimic on January 24, 2006, 08:14:30 AM
Dumb question-

I pretty much will need a full face mask as my nose isn't in perfect condition. What happens if I were sleeping with a full mask on and the power goes out?
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on January 24, 2006, 08:29:30 AM
You'll wake up really fast!  The outlet that my CPAP is plugged in to is on a switch for the lamp.  My wife turned off the switch one night and I freaked.  Power has gone off a few times too.  No biggie.  Just wake up and take it off.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: onions! on January 24, 2006, 10:05:13 AM
At my three month follow up meeting w/my Dr I mentioned a few things that I'd noticed that had changed for me.
First,I was sleeping through the night w/fail.(WONDERFUL!)
Second,for the first couple of weeks I had expierienced cramps in my legs-it was like being a teenager all over again.Thankfully those went away.
The final,noticeable,thing that I noticed was an appetite INCREASE.I was hungry all the time.It was pretty wierd,I've not felt hunger pangs like that in years.When I told the Doc that he looked at me like I had just grown a second head & started scribbling in his notes.I was a bit concerned until he told me that I was the first to admit that symptom in "all his years".He then confided that there is a hormone released during (good)sleep that can make you hungry.I just have an overactive hormone (swell!).

My full face mask allows for my mouth to drop open so I don't start sucking on nothing if the juice goes out.I can't imagine being stuck in one of those rigs w/a chin strap.Yeesh.

The only problem I've had-& it's not much of one @ that-has to do w/the hose.The first time I looked into the mirror after just waking up & saw a long row of what looked like Caterpillar tracks up my face I freaked.A little.I'd slept w/the hose between my face & the pillow & the ribs had left their mark.It went away after a few minutes but was kinda funny.I guess you had to be there.Smiley

Anywho,this thing has completely changed my life.I'm still labeled as a curmudgeon,a malcontent,& a PITA @ work but I feel lots better.Smiley
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Sergeant Bob on January 24, 2006, 10:59:57 AM
Quote
I pretty much will need a full face mask as my nose isn't in perfect condition. What happens if I were sleeping with a full mask on and the power goes out?
Are you sure you need a full face mask? Has anyone suggested using nasal pillows? They won't work for everyone, I can't use them because my pressure is to high (14.6cm) and the noise of the air rushing through them sounds like a wind tunnel. But, they may work for you.
Have you tried other masks, made by other manufacturers? Not all masks are alike. A mask which works great for one might not work at all for someone else. What kind of mask did they use on you? Was it a Comfort Gel or Comfort Lite?
As for mouth leaks (which might require you to use a full face mask), they can sometimes be overcome with other methods. Such as a mouthpiece made by a dentist (expensive) or maybe a homemade device such as I use. Cost me about two bucks to make and is much more comfortable than a chinstrap or taping your mouth closed (yes, some people do that).

Do not just take the word of your DME! Many of them just want to sell you something. Most of them don't know SQUAT.

Take control of your own treatment. Most of you are gunnies, and you don't go into a store and let them tell you what you need to buy. You get educated on what's avalilable, then you go get what you want. This should not be any different!

Depending on your insurance and if they don't require renting the machine first (or if you are spending your own money), you may be able to buy your machine outright.
In that case, you can get your equipment much cheaper if you don't buy it from a DME, Most of them charge up to twice what you would pay if you bought it yourself online.

Here's an excellant and reliable souce for all your CPAP needs.

http://www.cpap.com/

There is a link on their site for billing your insurance company.

http://www.billmyinsurance.com/
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Ex-MA Hole on January 24, 2006, 11:16:47 AM
I didn't realize how much I relied on mine until I slept without it one night...the next morning I knew it, let me tell you.

A bit over 6 months of use, it is a beautiful thing!!!
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on January 24, 2006, 01:09:04 PM
I have a "dent" in my forehead from the mask. I tdoesn't bother me and it gives my daughter something to pick on when she's mad at me such as, "Well, at least I don't have a DENT in my forehead!!"

LOL...
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Fjolnirsson on January 25, 2006, 02:31:35 PM
Ok. I've got a Dr. appt tomorrow to get a referral to a sleep specialist. I'm in a small area, so hopefully it won't take long to get a sleep study scheduled.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on January 25, 2006, 02:54:17 PM
Good luck! Prepare for the worst night of sleep you've ever had!

Cheesy
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: brimic on January 25, 2006, 03:48:35 PM
Good luck.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Brian Williams on January 26, 2006, 05:15:59 AM
Hey guys look for an item called a nasal pad, it is smaller than a mask and just straps to the side of your head and a small tube goes from your ear to your nose and the pads fit right in your nose.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Devon on January 26, 2006, 09:26:20 AM
I had sleep apnea, I would stop breathing avg. 47 times per hour per sleep study results. I used the CPAP machine for ~ 2 years. During that time I used several different style masks before I found one that I could tolerate. Also get a product called AYR, it helps keep your sinuses from getting too dry, the humidifier didn't work for me. I eventually ended up having the corrective surgery so I dont need the CPAP anymore. I dont recommend having the surgery, it's painful, takes a long time to recover, and in my case I had to relearn how to swallow even simple things like water. I still after 5 years post-op have difficulty swallowing water without choking. Best thing is to use the CPAP IMHO.

Devon
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on January 26, 2006, 10:19:04 AM
Yes, I use nasal moisturizer before bed and we humidify the room. Dry sinuses lead to nose bleeds. I also have found that those "breathe right" nasal strips used with the CPAP will improve the airflow even more. On those nights when the nose or sinuses are too stuffy I do a small puff of Afrin in each nostril. Only once and only when necessary. I hear the stuff can be addictive.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Fjolnirsson on January 26, 2006, 11:31:36 AM
Just thought of something, as I dress for my Dr appt. I have terrible nasal allergies. Not as bad as in CA, where I was stuffed up or running/sneezing 10-11 months out of 12. Here in Oregon, I have a stuffed up nose about 4 months of the year, and runny nose/sneezing for around a month and a half. If I can't breathe through my nose, will the mask still work for me?
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on January 26, 2006, 12:06:32 PM
I have a lot of trouble breathing through my nose most times.  I blow it real good and use a saline nasal spray just before hosing up at night.  It's amazing how much this will open up your nasal passages.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on January 26, 2006, 12:36:35 PM
Tell the doctor!

And tell us what he/she says! Please!

Cheesy
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Fjolnirsson on January 26, 2006, 03:32:09 PM
Quote from: TarpleyG
hosing up at night.  
Greg
Lol. What an image...

Anyway, The doctor set me up with the lab for a blood test(don't know if that's related or not), and sent in the paperwork for the oxygen test. The way they do it here, is the testing company loans the equipment and to you with instructions, and you do the test at home. After that, I go for the part where they try the mask on me overnight. Didn't ask about the allergies, forgot. The sleep specialist will know more, I'd guess.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: brimic on January 26, 2006, 04:27:13 PM
Quote
Anyway, The doctor set me up with the lab for a blood test(don't know if that's related or not),
Maybe to rule out thyroid or liver problems?
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Fjolnirsson on January 26, 2006, 05:45:59 PM
Could be. I don't argue with blood tests, I figure it can't hurt, and may alert me to something dangerous.
It's one of those where I have to fast for 12 hours prior, so they can test my blood sugar.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: brimic on February 03, 2006, 12:57:56 AM
Just got set up with a machine and mask yesterday. Not sure of any improvement yet as I only got about  2.5 hours of sleep before work tonight, I guess I'll get to give it a full test run in a few hours.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on February 03, 2006, 02:41:02 AM
Quote from: brimic
Just got set up with a machine and mask yesterday. Not sure of any improvement yet as I only got about  2.5 hours of sleep before work tonight, I guess I'll get to give it a full test run in a few hours.
It'll take you a few weeks before you start seeing any improvement.  Of course, YMMV.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: 280plus on February 03, 2006, 03:04:38 AM
Actually, The first night I wore it I DID NOT get up 5-6 times to pee. I thought getting up this many times was normal for someone who drinks a lot of water like I do.

Good luck, hose head!! Don't be afraid to ask questions. I'm sure we'd all be glad to help our newbies. Hell, I'm happy knowing we turned so many on to this! May you all enjoy life a little more!!

Cheesy
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Brian Williams on February 03, 2006, 03:16:31 AM
I talked with a friend who uses one of these yesterday and he was telling me about the Swift system, it uses a smaller tube and comes along side his head and had a pillow like arrangement for his nose, it is a lot smaller than a normal tube system.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Fjolnirsson on February 04, 2006, 03:53:58 PM
Well, the blood test came back. Glucose is fine, Cholesterol is ok, but bad cholesterol is a little elevated. Guess I need to eat more Cheerios, and lay off the bacon for a while.
I picked up the machine for measuring my oxygen level yesterday. Decided to sleep on my back, as it seems that would be the worst position. My wife was listening, though, and says I actually snore and stop breathing more on my side. I'm a little concerned the machine wasn't working right. I had a heck of a time getting ti set up right. It would run for a few minutes, then stop reading. So, I may have to do this again. I hope not. Awful, absolutely awful sleep last night! Once I finally got the danged thing to work right(after two hours), I couldn't get comfortable. My wife said I snored horribly, and was stopping my breathing so often it scared her. I kept forgetting thwe machine was there, and turning over on my stomach, so I was lying on top of the machine. I finally took it off after 10 hours, and slep four hours over my normal wakeup this morning.
So, I trun the machine in Monday, then make a Dr appointment for a referral to the sleep clinic. At this point, I'm afraid the doctor will say nothing's wrong, that it's all in my head. If so, I'll have to see another doc. At this point, having learned about sleep apnea, it's worse than before. Now I feel as though there's a chance at a normal life, without constant exhaustion. I've caught myself fantisizing about a good night's sleep with the machine, LOL!
Well, wish me luck!
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: M14rick on February 05, 2006, 10:08:43 AM
I have been on the machine now for +3 months. I have no problems with the machine, a Respironics Remstar Pro2 with CFLEX (pressure automatically drops on exhalation) and heated humidifier. The mask, on the other hand (Respironics Comfort Classic) is not easy for me to get along with...I would like to try the Respironics Comfort Curve interface. I do get a better nights sleep, was getting up 2-4 times to pee, but not any more. I didn't experience any weight loss, until I was let go from a high stress job. Now I eat more sensibly, and am losing weight. I wish my wife would go and get a sleep study, since the main reason I went was to stop her nagging about my snoring....it worked for me, but I still hear her snoring, and she does stop breathing sometimes. She gripes about being tired all the time, too. I guess if she got the machine it would eliminate her favorite excuse for denying maritial bliss!
I do dream now, it had been a long time since I had dreams, and they were usually nightmares...I am an alcoholic, and stopped drinking in '98.
Go with CPAP if you need it, I am glad I did!
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: InfidelSerf on February 05, 2006, 11:15:12 AM
Ok after reading over this thread, I found that I experience many of the symptoms you hoseheads experienced before going on treatment.
A couple of comments/questions though...
First, I don't have any health insurance, so all expenses in seeking treatment would be on my own.
Second, do you HAVE to have a DR. referall just to get in for a sleep test.
And third, since I know that increased oxygen during sleep would benefit me, why would I even bother spending $3200 on a study just to tell me that "Yep you have so many arousals per hour,  you need a CPAP machine."  
Why not just shell out $300-500 on one of those machines and start the treatment on myself.

I don't really see any NEGATIVE effects of increasing the air flow during sleep.  So even if I didn't need it it wouldn't hurt me. Right?

-edit- after some further research is seems that an auto adjusting CPAP machine would be the choice without a sleeptest.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: TarpleyG on February 05, 2006, 12:38:22 PM
Well, you'd have to know what level to set your machine at to start with.  Not sure what would happen if you were using the wrong pressure.  Probably not much if it were too low but maybe a bunch if it were too high.  If the autoadjust CPAP (BIPAP?) would do this automatically, shoudl be no biggie.  I am sure there are plenty of folks self-diagnosing like you but maybe not so many willing to openly discuss on the Internet.  Buying equipment will be the major hurdle.  It's all going to be secon-hand stuff which is okay I guess.  E-bay should be a start.

Greg
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: InfidelSerf on February 05, 2006, 06:34:15 PM
Quote
It's all going to be secon-hand stuff which is okay I guess.
Why would only second hand equipment be available?
This site seems to be selling new with no requirement of a Dr. referal http://www.cpap.com/
Perhaps I'm missing something.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Sergeant Bob on February 05, 2006, 07:56:15 PM
Quote from: veloce851
Quote
It's all going to be secon-hand stuff which is okay I guess.
Why would only second hand equipment be available?
This site seems to be selling new with no requirement of a Dr. referal http://www.cpap.com/
Perhaps I'm missing something.
That's an excellant site to buy your XPAP equipment however, you will need a presription to buy from them.
If I was going to buy equipment without using insurance that is where I would buy it from.  
You'll not likely find XPAP equipment on EBay because it does require a script. People do list equipment on there but it is removed once they find out.

If you can get a prescription from a doctor (any doctor) you can buy from cpap.com. Many people have administered their own treatment by buying an APAP machine (Automatic Positive Airway Pressure). With an APAP you really don't have to worry about doing it wrong and it will allow you to monitor your progress and make the necessary adjustments to improve your treatment.

You need to get educated on how to treat OSA, and you can learn more by going to the forums at cpap.com than you are likely to learn from most doctors.
There are alot of different machines, and alot of different masks you can buy. There is no such thing as one mask which works for everyone. There is alot more to it than just slapping on a mask and cranking up a machine. It's not real hard to treat but, if you don't know anything about it you'll waste alot time and money without getting the full benefit of the treatment.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: InfidelSerf on February 10, 2006, 06:35:53 AM
Thanks Sgt. Bob, and TarpleyG for the feedback.

I will have to do more research and see if its worth acquiring a machine.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Trebor on February 10, 2006, 10:45:20 PM
Thanks for the links to CPAPTALK and the othe forums. I posted there on the problems I'm having. Basically, I have a machine that I never use because I couldn't get used to it. I decided to try it again and gettting more info looks like it might help.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: brimic on February 10, 2006, 10:51:47 PM
I take to my machine like a duck to water. I sleep during the day because of my job and now I have the added bonus of pulling the covers over my head to block out sunlight without having the feeling of suffocating. It takes me about 5 minutes of fidgeting to get comfortable, after that, its all good. I'm not sleeping nearly as much either. I find that after sleeping 5 hours on the machine, I want to get out of bed and do things, the longest I've slept so far on the machine was 6 1/2 hours, but I suppose I'm getting far more rested in that much time than if I sleep 9 hours without it.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Sergeant Bob on February 11, 2006, 06:05:50 AM
Quote from: Trebor
Thanks for the links to CPAPTALK and the othe forums. I posted there on the problems I'm having. Basically, I have a machine that I never use because I couldn't get used to it. I decided to try it again and gettting more info looks like it might help.
They are a great resource for info on CPAP. There are people there who have been on CPAP since it began and know more about it than most any doctor. I'm glad it was helpful.
Quote from: veloce851
Thanks Sgt. Bob, and TarpleyG for the feedback.
Quote
I will have to do more research and see if its worth acquiring a machine.
My pleasure. I had a sleep study myself ($3,200 worth) and all I learned there was that I had OSA. Not much about how to treat it. Through those forums I learned enough to have at least some knowledge of machines and masks, and how to make it all work.
Many people go into it blind, and when it doesn't work for them they just give up, not getting the benefit of the treatment. I firmly believe in the treatment is beneficial.
Before I started, I would get sleepy while driving, drift off while reading or in classes, woke up at night about every 2 hours to use the bathroom, would wake up in a puddle of sweat. Now all of that is over.
Quote from: brimic
I take to my machine like a duck to water. I sleep during the day because of my job and now I have the added bonus of pulling the covers over my head to block out sunlight without having the feeling of suffocating.
Me too! I call my machine and mask my SCUBA (Self Contained Undercover Breathing Apparatus) gear.
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Fjolnirsson on February 22, 2006, 05:00:15 PM
Gah!
Title: How many here have sleep apnea?Anyone sleep w/a compressor?
Post by: Fjolnirsson on February 22, 2006, 05:35:02 PM
Hmmmmm...
I don't know where the rest of that last post went. Anyway, I went back to the doctor, after they finally got in the results of the oxygen level test I did. So, I do have apnea, and now I'm waiting to hear back from the sleep center to schedule my appt for the overnight stay.